A Journey Through Trisomy 13
Yesterday my dad and I rushed to the hospital three hours away to meet a cousin who had broken all of the doctor’s expectations.
My tiny cousin has Trisomy 13 and they didn’t expect him to make it to delivery. We got to the hospital moments after Carter Lee was born. He was the tiniest baby I have ever seen, being just two pounds four ounces and he was only 15.8 inches long. Everyone said it was like holding a baby doll. I spent the day with my aunt helping her photograph his beautiful but all too short life. You see, my little cousin Carter lived only an hour and twenty minutes outside of his mother’s womb.
Heartache Of Trisomy
Later in the waiting room, I sat there watching the other families laughing and smiling, and then I looked at the other side of the waiting room where a sister silently sobbed, an aunt stared off at nothing at all. A Grandparent sat with tears in their eyes instead of a smile. And I look at the others caught up in their own little world and it seems almost cruel that time can go on. I wonder how you ever can heal? I wonder how broken hearts can ever be put back together. Whose hands can find all the tiny pieces like a jigsaw puzzle and craft them back together again?
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Who can make it look beautiful again?
Psalm 139:13 For you created my inmost being; you knit me together in my mother’s womb.
Isaiah 61:3 To all who mourn… he will give a crown of beauty for ashes, a joyous blessing instead of mourning, festive praise instead of despair…
How a mother can ever move on?
How can a photograph of a foot knit together your memories?
How after so many tears and so much pain you can ever be whole?
It amazes me how different our story was compared to those so happy around us. How tears and happy laughter could mix. How life could change you forever in a blink of an eye.
Psalms 34:18 The LORD is near to the brokenhearted and saves the crushed in spirit.
Today, it seems as if it is cruel that everyone else’s life goes on while someone else could be so shattered. Today, I sit and I edit the photos I took yesterday and I cry and I pray that one day there will be beauty from all of this pain.
Romans 8:26 In the same way, the Spirit helps us in our weakness. We do not know what we ought to pray for, but the Spirit himself intercedes for us through wordless groans.
Trisomy 13 – Hallelujah Anyway
And yet in the midst of the pain and heartbreak, I saw overwhelming love.
I saw why God gave us family.
I saw my dad kneel at the foot of my cousin’s bed as she held her baby and I saw him pray.
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